Dr. Beh\u00e7et Uz \u00c7ocuk Sa\u011fl\u0131\u011f\u0131 ve Hastal\u0131klar\u0131 Hastanesi \u00c7ocuk Hematoloji Uzman\u0131 Uz. Dr. \u015eebnem \u00d6nen G\u00f6ktepe, son y\u0131llarda hemofili tedavisinde b\u00fcy\u00fck bir d\u00f6n\u00fc\u015f\u00fcm ya\u015fand\u0131\u011f\u0131n\u0131 belirterek, “Eskiden tedavi yaln\u0131zca damar yoluyla verilen fakt\u00f6rlerle s\u0131n\u0131rl\u0131yd\u0131. \u015eimdi ise daha uzun etkili fakt\u00f6rler ve cilt alt\u0131ndan uygulanabilen ila\u00e7lar sayesinde hastalar\u0131n ya\u015fam\u0131 \u00e7ok daha kolay hale geldi.” dedi.
\n
17 Nisan\u2019\u0131n, t\u00fcm d\u00fcnyada D\u00fcnya Hemofili G\u00fcn\u00fc olarak an\u0131ld\u0131\u011f\u0131n\u0131 hat\u0131rlatan Uz. Dr. \u015eebnem \u00d6nen G\u00f6ktepe, hemofili hastal\u0131\u011f\u0131na y\u00f6nelik fark\u0131ndal\u0131\u011f\u0131n art\u0131r\u0131lmas\u0131n\u0131n hayati \u00f6nem ta\u015f\u0131d\u0131\u011f\u0131n\u0131 vurgulad\u0131. D\u00fcnya Hemofili Federasyonu\u2019nun kurulu\u015f y\u0131l d\u00f6n\u00fcm\u00fcne denk gelen bu \u00f6zel g\u00fcnde d\u00fczenlenen etkinliklerin, erken tan\u0131 oranlar\u0131n\u0131 art\u0131rd\u0131\u011f\u0131n\u0131 ve hasta ailelerine \u00f6nemli destek sa\u011flad\u0131\u011f\u0131n\u0131 belirtti.<\/p>\n
“Basit morluklar g\u00f6z ard\u0131 edilmemeli”
\n
Hastal\u0131\u011f\u0131n belirtilerine dikkat \u00e7eken G\u00f6ktepe, \u00f6zellikle \u00e7ocukluk \u00e7a\u011f\u0131nda g\u00f6r\u00fclen bulgular\u0131n erken tan\u0131 a\u00e7\u0131s\u0131ndan kritik oldu\u011funu vurgulayarak, “Kolay morarma, eklem i\u00e7i kanamalar, kas i\u00e7i kanamalar ya da k\u00fc\u00e7\u00fck cerrahi i\u015flemler sonras\u0131 uzun s\u00fcren kanamalar mutlaka ciddiye al\u0131nmal\u0131d\u0131r. Yenido\u011fan d\u00f6neminde g\u00f6bek ba\u011f\u0131 veya s\u00fcnnet sonras\u0131 kanamalar ilk ipucu olabilir.” dedi.
\n
Tekrarlayan eklem kanamalar\u0131n\u0131n tedavi edilmedi\u011finde kal\u0131c\u0131 hasara yol a\u00e7abilece\u011fini belirten G\u00f6ktepe, erken m\u00fcdahalenin sakatl\u0131k riskini ciddi \u00f6l\u00e7\u00fcde azaltt\u0131\u011f\u0131n\u0131 ifade etti.<\/p>\n
“Tedavide devrim niteli\u011finde geli\u015fmeler ya\u015fan\u0131yor”
\n
Son y\u0131llarda hemofili tedavisinde b\u00fcy\u00fck bir d\u00f6n\u00fc\u015f\u00fcm ya\u015fand\u0131\u011f\u0131n\u0131 belirten G\u00f6ktepe, \u00f6zellikle yeni nesil tedavilere dikkat \u00e7ekerek, \u015f\u00f6yle devam etti: “Eskiden tedavi yaln\u0131zca damar yoluyla verilen fakt\u00f6rlerle s\u0131n\u0131rl\u0131yd\u0131. \u015eimdi ise daha uzun etkili fakt\u00f6rler ve cilt alt\u0131ndan uygulanabilen ila\u00e7lar sayesinde hastalar\u0131n ya\u015fam\u0131 \u00e7ok daha kolay hale geldi.”
\n
\u00d6zellikle emicizumab gibi bispesifik antikorlar\u0131n tedavi anlay\u0131\u015f\u0131n\u0131 de\u011fi\u015ftirdi\u011fini vurgulayan G\u00f6ktepe, “Haftada bir ya da ayda bir yap\u0131lan enjeksiyonlarla kanama riski ciddi \u015fekilde azalt\u0131labiliyor. Bu \u00f6zellikle k\u00fc\u00e7\u00fck \u00e7ocuklar i\u00e7in b\u00fcy\u00fck bir avantaj” diye konu\u015ftu.<\/p>\n
“Ki\u015fiye \u00f6zel tedavi d\u00f6nemi ba\u015flad\u0131”
\n
G\u00fcn\u00fcm\u00fczde hemofili tedavisinin tamamen bireyselle\u015ftirildi\u011fini belirten G\u00f6ktepe, her hastaya ayn\u0131 yakla\u015f\u0131m\u0131n art\u0131k ge\u00e7erli olmad\u0131\u011f\u0131n\u0131 s\u00f6yleyerek, “Hastan\u0131n ya\u015fam tarz\u0131, kanama s\u0131kl\u0131\u011f\u0131 ve ila\u00e7 yan\u0131t\u0131na g\u00f6re \u00f6zel tedavi planlar\u0131 olu\u015fturuyoruz. Ama\u00e7, hastalar\u0131n g\u00fcnl\u00fck hayatlar\u0131n\u0131 k\u0131s\u0131tlamadan ya\u015famlar\u0131n\u0131 s\u00fcrd\u00fcrebilmeleri” dedi.
\n
Gen tedavisinin de umut vadetti\u011fini ifade eden G\u00f6ktepe, “Tek seferlik uygulamalarla uzun s\u00fcreli hatta kal\u0131c\u0131 \u00e7\u00f6z\u00fcmler hedefleniyor. Bu alanda \u00e7al\u0131\u015fmalar h\u0131zla ilerliyor” diye konu\u015ftu.<\/p>\n
“Do\u011fru bilgi hayat kurtar\u0131r”
\n
Hemofilili bireylerin bilin\u00e7li olmas\u0131n\u0131n tedavinin en \u00f6nemli par\u00e7as\u0131 oldu\u011funu vurgulayan G\u00f6ktepe, \u015fu uyar\u0131larda bulundu: “Uygun sporlar\u0131n se\u00e7ilmesi, riskli ila\u00e7lardan ka\u00e7\u0131n\u0131lmas\u0131 ve d\u00fczenli doktor takibi b\u00fcy\u00fck \u00f6nem ta\u015f\u0131yor. Ayr\u0131ca genetik dan\u0131\u015fmanl\u0131k sayesinde hastal\u0131\u011f\u0131n gelecek nesillere aktar\u0131m\u0131 da \u00f6nlenebilir.”<\/p>\n
Son s\u00f6z: “Fark\u0131ndal\u0131k, erken tan\u0131 demek”
\n
D\u00fcnya Hemofili G\u00fcn\u00fc\u2019n\u00fcn \u00f6nemine dikkat \u00e7eken G\u00f6ktepe, s\u00f6zlerini \u015f\u00f6yle tamamlad\u0131: “Bug\u00fcn hemofili, do\u011fru tedavi ve takip ile kontrol alt\u0131na al\u0131nabilen bir hastal\u0131k. Ancak h\u00e2l\u00e2 tan\u0131 almam\u0131\u015f \u00e7ok say\u0131da hasta var. Fark\u0131ndal\u0131k artt\u0131k\u00e7a, hayatlar kurtuluyor.”
<\/p>\n","protected":false},"excerpt":{"rendered":"
Dr. Beh\u00e7et Uz \u00c7ocuk Sa\u011fl\u0131\u011f\u0131 ve Hastal\u0131klar\u0131 Hastanesi \u00c7ocuk Hematoloji Uzman\u0131 Uz. Dr. \u015eebnem \u00d6nen G\u00f6ktepe, son y\u0131llarda hemofili tedavisinde b\u00fcy\u00fck bir d\u00f6n\u00fc\u015f\u00fcm ya\u015fand\u0131\u011f\u0131n\u0131 belirterek, “Eskiden tedavi yaln\u0131zca damar yoluyla verilen fakt\u00f6rlerle s\u0131n\u0131rl\u0131yd\u0131. \u015eimdi ise daha uzun etkili fakt\u00f6rler ve cilt alt\u0131ndan uygulanabilen ila\u00e7lar sayesinde hastalar\u0131n ya\u015fam\u0131 \u00e7ok daha kolay hale geldi.” dedi. 17 Nisan\u2019\u0131n,…<\/p>\n","protected":false},"author":1,"featured_media":98108,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_crdt_document":"","footnotes":""},"categories":[2],"tags":[],"class_list":["post-98107","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik"],"_links":{"self":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/98107","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=98107"}],"version-history":[{"count":1,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/98107\/revisions"}],"predecessor-version":[{"id":98109,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/98107\/revisions\/98109"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/media\/98108"}],"wp:attachment":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=98107"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=98107"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=98107"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}