Nadir g\u00f6r\u00fclen akci\u011fer hastal\u0131\u011f\u0131 Lenfanjiyoleyomiyomatozis (LAM) i\u00e7in T\u00fcrkiye\u2019nin ilk uluslararas\u0131 onayl\u0131 LAM Klini\u011finin kuruldu\u011fu Denizli\u2019de, tan\u0131, tedavi ve takip s\u00fcre\u00e7lerinde uzmanla\u015fm\u0131\u015f multidisipliner bir merkez olu\u015fturuldu.<\/p>\n
G\u00f6\u011f\u00fcs Hastal\u0131klar\u0131 Anabilim Dal\u0131 \u00d6\u011fr. \u00dcyesi Prof. Dr. G\u00f6ksel Alt\u0131n\u0131\u015f\u0131k Ergur\u2019un direkt\u00f6rl\u00fc\u011f\u00fcnde olu\u015fturulan klinik, radyoloji, kad\u0131n hastal\u0131klar\u0131 ve do\u011fum, g\u00f6\u011f\u00fcs cerrahisi, patoloji, \u00fcroloji, endokrinoloji, t\u0131bbi genetik, dermatoloji, psikiyatri ve pulmoner rehabilitasyon bran\u015flar\u0131ndan uzman hekimler ile bir sosyal hizmet uzman\u0131ndan olu\u015fan geni\u015f bir ekiple hizmet verecek. \u00dclke genelinde LAM hastalar\u0131na d\u00fczenli takip olana\u011f\u0131 sa\u011flarken tele-t\u0131p uygulamalar\u0131yla da farkl\u0131 \u015fehirlerde ya\u015fayan hastalar\u0131n eri\u015fimini kolayla\u015ft\u0131rmay\u0131 ama\u00e7layan klinik, yurt d\u0131\u015f\u0131nda y\u00fcr\u00fct\u00fclen ara\u015ft\u0131rmalarla ba\u011flant\u0131 sa\u011flayarak hastalar\u0131n yeni tedavi se\u00e7eneklerine ula\u015fmas\u0131na katk\u0131da bulunacak.<\/p>\n
Prof. Dr. G\u00f6ksel Alt\u0131n\u0131\u015f\u0131k Ergur, uzun y\u0131llard\u0131r nadir akci\u011fer hastal\u0131klar\u0131 \u00fczerinde \u00e7al\u0131\u015ft\u0131\u011f\u0131n\u0131 belirterek; “LAM, \u00e7ok az say\u0131da ki\u015fiyi etkilemesine ra\u011fmen hastalar\u0131n ya\u015fam kalitesini ciddi \u015fekilde etkileyebilen bir hastal\u0131kt\u0131r. Hastal\u0131k hafif seyir g\u00f6sterebilece\u011fi gibi zamanla oksijen deste\u011fi gerektirecek d\u00fczeyde solunum fonksiyon kayb\u0131na da yol a\u00e7abilmektedir. Bu nedenle \u00f6zellikle do\u011furganl\u0131k \u00e7a\u011f\u0131ndaki kad\u0131nlarda tan\u0131, tedavi planlamas\u0131 ve takip s\u00fcreci deneyimli bir ekip taraf\u0131ndan y\u00fcr\u00fct\u00fclmelidir. Amerika Birle\u015fik Devletleri merkezli LAM Vakf\u0131 ile 11 y\u0131ld\u0131r i\u015f birli\u011fi i\u00e7inde \u00e7al\u0131\u015f\u0131yoruz. LAM Vakf\u0131, k\u0131z\u0131n\u0131n LAM tan\u0131s\u0131 almas\u0131yla bu hastal\u0131k konusunda d\u00fcnya \u00e7ap\u0131nda fark\u0131ndal\u0131k ve ara\u015ft\u0131rmalar\u0131n artmas\u0131 i\u00e7in kurulan \u00e7ok g\u00fc\u00e7l\u00fc bir kurum. Bu y\u0131lki bilimsel toplant\u0131lar\u0131nda T\u00fcrkiye\u2019nin ilk LAM Klini\u011finin direkt\u00f6rl\u00fc\u011f\u00fcn\u00fc \u00fcstlenmemi teklif etmeleri bizim i\u00e7in b\u00fcy\u00fck bir onur oldu. Bu uluslararas\u0131 ba\u011flant\u0131 sayesinde hem g\u00fcncel tedaviler hem de devam eden klinik ara\u015ft\u0131rmalar hakk\u0131nda an\u0131nda bilgi sahibi olabiliyor, gerekti\u011finde \u00fclkemizdeki hastalar\u0131 bu \u00e7al\u0131\u015fmalarla bulu\u015fturabiliyoruz. LAM, d\u00fcnyada \u2018\u00f6ks\u00fcz hastal\u0131k\u2019 olarak kabul ediliyor. Hastalar \u00e7o\u011fu zaman anla\u015f\u0131lm\u0131yor, hekimler ise yeterli deneyime sahip uzman merkezlere ula\u015fmakta g\u00fc\u00e7l\u00fck \u00e7ekiyor. Bu klinikle amac\u0131m\u0131z; hastalar\u0131m\u0131za d\u00fczenli ve nitelikli bir takip sunmak, hekimlerimize destek olmak, uluslararas\u0131 ara\u015ft\u0131rmalar\u0131n \u00fclkemizdeki ba\u011flant\u0131 noktas\u0131 olmak ve LAM konusunda fark\u0131ndal\u0131\u011f\u0131 art\u0131rmakt\u0131r. Ekibimiz tamamland\u0131, ulusal hasta destek grubunun olu\u015fturulmas\u0131 i\u00e7in \u00e7al\u0131\u015fmalar\u0131m\u0131z s\u00fcr\u00fcyor” \u015feklinde kuruldu.
<\/p>\n","protected":false},"excerpt":{"rendered":"
Nadir g\u00f6r\u00fclen akci\u011fer hastal\u0131\u011f\u0131 Lenfanjiyoleyomiyomatozis (LAM) i\u00e7in T\u00fcrkiye\u2019nin ilk uluslararas\u0131 onayl\u0131 LAM Klini\u011finin kuruldu\u011fu Denizli\u2019de, tan\u0131, tedavi ve takip s\u00fcre\u00e7lerinde uzmanla\u015fm\u0131\u015f multidisipliner bir merkez olu\u015fturuldu. G\u00f6\u011f\u00fcs Hastal\u0131klar\u0131 Anabilim Dal\u0131 \u00d6\u011fr. \u00dcyesi Prof. Dr. G\u00f6ksel Alt\u0131n\u0131\u015f\u0131k Ergur\u2019un direkt\u00f6rl\u00fc\u011f\u00fcnde olu\u015fturulan klinik, radyoloji, kad\u0131n hastal\u0131klar\u0131 ve do\u011fum, g\u00f6\u011f\u00fcs cerrahisi, patoloji, \u00fcroloji, endokrinoloji, t\u0131bbi genetik, dermatoloji, psikiyatri ve pulmoner…<\/p>\n","protected":false},"author":1,"featured_media":71445,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_crdt_document":"","footnotes":""},"categories":[2],"tags":[],"class_list":["post-71444","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik"],"_links":{"self":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/71444","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=71444"}],"version-history":[{"count":1,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/71444\/revisions"}],"predecessor-version":[{"id":71446,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/71444\/revisions\/71446"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/media\/71445"}],"wp:attachment":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=71444"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=71444"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=71444"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}