T\u00fcrkiye Duchenne Kas Hastal\u0131\u011f\u0131 Derne\u011fi temsilcisi aileler ve \u00e7ocuklar\u0131 Germencik Belediye Ba\u015fkan\u0131 Burak Zencirci\u2019yi ziyaret etti.
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\u00d6l\u00fcmc\u00fcl kas hastal\u0131\u011f\u0131 olarak bilinen Duchenne Musk\u00fcler Distrofisi hastal\u0131\u011f\u0131yla m\u00fccadele eden aileler seslerini duyurabilmek i\u00e7in Ba\u015fkan Zencirci\u2019yle bir araya geldi. G\u00f6r\u00fc\u015fmede aileler \u00e7ocuklar\u0131n\u0131n hastal\u0131\u011f\u0131n\u0131n ciddiyeti ile ilgili seslerinin duyuramad\u0131klar\u0131n\u0131 ifade etti. Ba\u015fkan Zencirci de ailelerin seslerinin duyurma ve hastal\u0131\u011f\u0131n tedavisine y\u00f6nelik daha b\u00fcy\u00fck ad\u0131mlar\u0131n at\u0131lmas\u0131 i\u00e7in ellerinden ne geliyorsa yapacaklar\u0131n\u0131 ifade ederek, deste\u011finin tam oldu\u011funu s\u00f6yledi.
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DMD gibi \u00f6l\u00fcmc\u00fcl hastal\u0131klarla m\u00fccadele eden \u00e7ocuklara y\u00f6nelik fark\u0131ndal\u0131k olu\u015fturmak i\u00e7in \u00e7al\u0131\u015fma yapan Germencik Belediye Ba\u015fkan\u0131 Burak Zencirci ge\u00e7ti\u011fimiz g\u00fcnlerde de 5 ya\u015f\u0131ndaki DMD hastas\u0131 Efehan Aky\u00fcz\u2019\u00fc a\u011f\u0131rlam\u0131\u015f ve tedavisi i\u00e7in kampanyaya destek i\u00e7in \u00e7a\u011fr\u0131 yapm\u0131\u015ft\u0131. DMD T\u00fcrkiye Derne\u011fi Ayd\u0131n Temsilcisi aileleri a\u011f\u0131rlayan Ba\u015fkan Zencirci \u00e7a\u011fr\u0131s\u0131n\u0131 yineledi. Ba\u015fkan Zencirci “\u00c7ocuklar\u0131m\u0131z\u0131n hayata tutunmas\u0131 i\u00e7in tedavilerinin yap\u0131lmas\u0131 gerekiyor. \u0130la\u00e7 maliyetleri \u00e7ok y\u00fcksek, zaman ise \u00e7ok dar. 5 ya\u015f\u0131nda te\u015fhis edilen DMD hastal\u0131\u011f\u0131 k\u0131sa bir s\u00fcre sonra y\u00fcr\u00fcme kayb\u0131na en fazla da 20-25 ya\u015f\u0131nda can kayb\u0131na yol a\u00e7an tehlikeli ve \u00f6l\u00fcmc\u00fcl bir hastal\u0131k. Bir an \u00f6nce kal\u0131c\u0131 \u00e7\u00f6z\u00fcmler olu\u015fturularak mevcut hasta miniklerimizin ve gelecekte yakalanacak \u00e7ocuklar\u0131m\u0131za nefes olmam\u0131z gerekiyor. Bizler onlar\u0131n bu zorlu m\u00fccadelesinde her zaman destek olaca\u011f\u0131z, seslerini duyurmak i\u00e7in elimizden geleni yapaca\u011f\u0131z” dedi.
<\/p>\n","protected":false},"excerpt":{"rendered":"
T\u00fcrkiye Duchenne Kas Hastal\u0131\u011f\u0131 Derne\u011fi temsilcisi aileler ve \u00e7ocuklar\u0131 Germencik Belediye Ba\u015fkan\u0131 Burak Zencirci\u2019yi ziyaret etti. \u00d6l\u00fcmc\u00fcl kas hastal\u0131\u011f\u0131 olarak bilinen Duchenne Musk\u00fcler Distrofisi hastal\u0131\u011f\u0131yla m\u00fccadele eden aileler seslerini duyurabilmek i\u00e7in Ba\u015fkan Zencirci\u2019yle bir araya geldi. G\u00f6r\u00fc\u015fmede aileler \u00e7ocuklar\u0131n\u0131n hastal\u0131\u011f\u0131n\u0131n ciddiyeti ile ilgili seslerinin duyuramad\u0131klar\u0131n\u0131 ifade etti. Ba\u015fkan Zencirci de ailelerin seslerinin duyurma ve hastal\u0131\u011f\u0131n…<\/p>\n","protected":false},"author":1,"featured_media":15768,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_crdt_document":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-15767","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guncel"],"_links":{"self":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/15767","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=15767"}],"version-history":[{"count":1,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/15767\/revisions"}],"predecessor-version":[{"id":15769,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/posts\/15767\/revisions\/15769"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=\/wp\/v2\/media\/15768"}],"wp:attachment":[{"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=15767"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=15767"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.egemtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=15767"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}